Cool Cars for Kids exists to provide help and hope to children born with rare genetic diseases and to support research that will identify the best possible treatments.
RARE DISEASES ARE NOT SO RARE!
There are over 7,000 rare diseases & disorders that combined affect 30 million Americans – that is 1 in 10 of us – and more than half are children.
- Every 4.5 minutes, a baby is born with a birth defect in the U.S.
- Birth Defects affect 1 in every 33 babies
- born in the U.S. each year- that’s 120,000 babies a year!
Developmental disorders and birth defects are lifelong conditions. Majority are due to an underlying genetic diagnosis. Some genetic diagnoses can be inherited from other family members while others are new diagnoses that can spontaneously occur in a child for the first time. While you may be familiar with some of these conditions (Down syndrome, cleft lip, spina bifida), others are not as widely known.
In the last few years, the rapid explosion of genetic
information coupled with technological advances has allowed for clinicians and
scientists to not only better understand childhood disability and birth defects
but also identify hundreds of new genes and new genetic diagnoses. With
continued research, this information can be used to increase our knowledge of
these diagnoses and identify the best possible treatments.
Cool Cars for Kids exists to promotes awareness and fund research for many different types of rare genetic disorders. Cool Cars for Kids strives to provide help and hope to children with all different types of genetic diagnoses. The children and their families affected by these diagnoses inspire us all with their bravery, strength and love of life.